Monday, June 24, 2013

New chemo is like getting life back

In the weeks that have followed since my last round of A/C Chemo, I have started a new type of weekly chemo. Well, two of them actually- taxol and herceptin. Since there's so much to catch up on with what we've been doing, I'm just going to give you a captioned photo update so you can see just how well things are going, peppered with only a few days of not feeling so great. I know it's a little scattered, but I still hope you enjoy! xoxo, Ry

First we found this little turd
Up in Duluth, a skeleton in the woods
Steve and Duckie hang out in Duluth
William and SK embrace after a dance party
Botzy and Lauren love Duckie
Donna and William get their root on




Jord and Botzy play outside
Pig meets Dog
William loves Duckie

Donna and William
William at Gooseberry
Mr. Monkey Man


Ninja Turtle Sighting
Rock the Garden from the cheap seats





We run into my favorite little Wulfric
We kidnap a five year old
Astronautalis and Sims show
Working on Que Sehra Farm
Amy hennas the littlest leg and our friends leave for tour

Jacque finds shade


 
Riding in the Riviera








Tuesday, June 4, 2013

Fundraiser Event Success!! ... and General Update

So, it's been a short while since our event. Sorry we haven't gotten around to a post until now. We've been busy, and all in all exhausted!

Before getting into anything else though, a HUGE Thank You to everyone that has helped us out through this. Whether you were able to make the event or not, helped us meet our fundraising goal, or have even been sending positive vibes our way, Thank You!!!

We've been amazed at the incredible amount of support we've received so far! Thank You, Thank You, Thank You! We can't say it enough, and will hopefully have some time to decompress and say it a little more personally soon.

The event itself was a huge success!

Thank you to AmberJean and Salon Ori for letting us host it there, shaving all of our heads, and providing post shave gift certificates!

Thank you to Kaylyn Knopp for catering the event. Check out her catering facebook page: Vegano Private Catering.

Thank you to Amy and her business Mehndi Moments for doing all of the awesome henna!

Thanks to Chelsea, Snorine, Amy, Al, Shell, and Piper for raising money and shaving their heads with us!

Thank You AmberJean!
Thank you to everyone that provided silent auction items!
Before Head Shaving
After Head Shaving
First cut!
I think she enjoyed this immensely.
Mehndi Moments. Thanks Amy!


It was an awesome event. We really enjoyed it, and we hope you did as well.

Some amazing news, is that we've far surpassed our initial fundraising goal! When we first started talking about doing any sort of fundraising, Ryan wanted to set the goal at around $8000, as that's what we figured would get us through with minimal difficulty. I objected because I thought there was no way we would raise more than $5000. We compromised on a goal of $6000, as that's what we figured we could make it by with.

Well you've helped us raise about $9000!! Your generosity and kindness has absolutely blown us away. Thank you again!

All the Hugs!!

~ William Veldt
_ _

Onto the update...

This should probably be two different posts but when it rains, it pours. So there.

This past week has been unusually difficult for me for some reason. Chemo is cumulative so perhaps it's just catching up with me. This has been the most challenging post chemo recovery yet. I've been more nauseous than usual, making it increasingly difficult to eat and I feel like I've exhausted all my food options. Nothing sounds appealing so right now I'm eating a lot of cereal. On top of that, if I even think about chemo and a particular thing that goes with it**, I immediately need to drink something flavored or I feel like I'm going to be sick.
Port Picture

My hearing has come back. Hopefully to stay but it will be a couple days, like last time, if I'm going to lose it again. This is one of those hurry up and wait side effects. Dr. Bloom says my ears look good in general so...

I just had my last Neulasta shot yesterday, which is brutal. It causes an unreasonable amount of pain for two days. I cried Sunday night thinking about having to go in for it Monday morning, which is really the first time that I've cried related to having cancer. I'm not really even sure why. I'm not upset about it. I don't think it's "unfair", as if there's some man in the sky doling out what we each do or don't deserve. Maybe it's just misplaced irritability over not being able to eat and then feeling super shitty when I don't eat.

I'm a little nervous for the next round of chemo. Twelve weeks worth, every single week. My oncologist says it's more tolerable. We'll see. My chemo schedule will continue to be on Fridays so I'm currently accepting applications for chemo buddies.

**Saline Flush
I appreciate all of you more than you will probably ever know. Literally each and every person that's ever so much as liked a post or even thought a nice thing about me. Thank you.

xoxo Ry

** The particular thing that goes with chemo that Ryan avoids thinking about at all costs is the saline flush that they do of her port almost every time we're in. They attach a syringe filled with a very concentrated saline solution to her port and pump it in to clean the port and the tube that goes into her jugular vein. The taste goes straight to her mouth and she makes some of the funniest faces, but she absolutely hates it.